Old School Tile Company doubles as pit stop
The Old School Tile Company in Hudson Lake had a unique experience on Tuesday, May 16, assisting a group of very dedicated Notre Dame students by providing a place to stop, rest up a bit, and use the facilities.
The Old School Tile Company was able to donate what they could to help their cause, and hopes to double it every year they come back.
The ESTEEM Road to Discovery, in tandem with the University of Notre Dame, is raising awareness and funds for The Ara Parseghian Medical Research Fund (APMRF). The Old School Tile Company was mile 20 of the 206 mile round trip bicycle ride to Chicago and back to South Bend.
For the past five summers, Greg Crawford, Ph.D., has biked cross-country to raise awareness for Niemann-Pick Type C (NPC) disease, a rare, genetic cholesterol-storage disorder that primarily affects children. NPC is usually diagnosed before or during adolescence and is always fatal.
Former Notre Dame football coach Ara Parseghian lost three of his grand children to the disease. Responding to that terrible loss, Ara and his family founded the Ara Parseghian Medical Research Foundation, a grass roots, non-profit organization dedicated to funding medical research projects to find a treatment for NPC and related neurodegenerative disorders, and have partnered with the University of Notre Dame to find a cure for this disease. The group stopped again the following day on mile 186, making the Old School Tile Company one of the only double stops on the trip.
If anyone would like to give to this great cause, check out their website at http://science.nd.edu/events/road-to-discovery/ or simply stop by Old School Tile Company in Hudson Lake and drop your check off and they will give it to Sean their group leader.